Current Outreaches
Camden Arce
On September 7, 2023 the Arce family received devastating news. Their son Camden was diagnosed with a very rare genetic mutation of the SPTAN1 gene.
Camden was born on April 7, 2023 at 35 weeks, weighing 4lb 10oz. Where he spent the next four weeks in the NICU to work on feeding and weight gain. Since birth, Camden has been through some extensive monitoring and testing for lack of gaining weight, however Camden was not reaching his growth and developmental benchmarks. Chris and Nicole have been working diligently to find some answers. After genetic testing was done. The Arce family finally had a diagnosis. That diagnosis being a SPTAN1 gene mutation.
This mutation is very rare with only 140 known cases worldwide and only 5 cases in the US. Prognosis is poor with death usually occurring in infancy, 50% before the age of 2. At this time, there is no current treatment or cure. Currently, Camden is being followed by his Neurologist, Ophthalmologist, Gastro doctors along with weekly appointments for Physical and Occupational Therapy.
Due to the mutation, Camden was not making weight and developmental benchmarks. Nicole has recently left her teaching job to become Camdens full time caregiver.
San Bernardino County Fire Department stands behind their firefighters and their families. We will support the Arce family throughout this unknown and stressful time. We are reaching out on behalf of the Arce family for financial assistance to help them through the difficult time ahead as their is a lot unknown about this gene mutation.
The San Bernardino County Fire Benevolent Foundation is a non-profit charitable Foundation with the express mission of assisting firefighters and their families when faced with unexpected illness and tragic circumstances. Donations will help to meet the needs of the Arce family throughout this difficult process.
The Arce family wishes to express their immense gratitude for all who have supported them thus far, and for any person who can help in any way.
Captain Karl Hegle
Karl and his family need our support. It had been confirmed by an Oncology team that Karl had Stage 4 Pancreatic cancer that metastasized to his liver, and also his kidneys. This caused issues with kidney function, fluid retention, body pain, and swelling.
Unfortunately, Karl passed away on Nov. 2nd at Kaiser Los Angeles.
Karl was supported continually at his bedside by his girlfriend and 4 kids. He had a continuous stream of love with visitors from many SBCoFD personnel (especially so with those who transitioned from Upland FD), Local 935, LA SAR (where Karl was a volunteer), and multiple surrounding fire agencies. Someone was by his side since he arrived at Kaiser Sunset, by his side after his passing, and during a procession for him that led all the way to the high desert. Local 935, The San Bernardino County Firefighters Association, the San Bernardino County Fire CARE Team, and the San Bernardino County Fire Benevolent Foundation are all working together to support Karl's family through this and will remain by their side throughout.
The family cannot express their thanks enough for the flow of visitors that lifted their spirits and provided comfort. Everyone will always remember Karl's favorite greeting as “Every day is a gift brother!”. That could not be more true now. Please keep Karl's family in your thoughts and prayers. Funeral arrangements will be announced in the near future.
*All information contained in this email is released with the permission of Karl Hegle and family.
Mikah Carney
On Friday, September 14th, 2018, the Carney family received the most devastating news of their lives. They learned that Mikah, their brave and batman loving four-year old, was diagnosed with B-Cell Acute Lymphoblastic Leukemia.
He was first admitted into Pomona Valley Hospital Medical Center on Thursday, September 13th, because of Michael’s intuition that something just did not seem right. At Pomona Valley Hospital, they confirmed that his red and white blood cells, along with his platelets, were low and they would need to send him to a children’s specialist for an exact diagnosis. Michael asked the doctors if Mikah could go to Loma Linda University Medical Center. After a team of specialists did the bone marrow biopsy, it was confirmed that 91% of Mikah’s bone marrow was full of Leukemia. Mikah would be starting a very aggressive 28 day regimen of chemotherapy the following day. The goal is to reduce the leukemia cells to 0.1% in the first 28 days.
The Carney family now begins a journey that they never imagined they would be on. They are heartbroken to watch their sweet and lively four-year old become sad and somber. They are also thinking of their three other children and how life is going to shift so quickly for them.
They will not walk this cancer journey alone. San Bernardino County Fire Department stands behind their firefighters and their families. We will support them through this stressful process. We are reaching out on behalf of the family for financial assistance to help them through the difficult time ahead.
The San Bernardino County Fire Benevolent Foundation is a non-profit charitable foundation with the express mission of assisting firefighters and their families when faced with unexpected illness and tragic circumstances. Donations will help to meet the needs of the Carney family throughout this difficult process.
The family wishes to express their immense gratitude for all who have supported them thus far, and for any person who can help in any way. They pray and are trusting that the God who blessed them with their children will also be along side them every step of the way through this season of life.
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Donations by check or money order:
Make the check or money order out to:
"San Bernardino County Fire Benevolent Foundation"
Please mail to: 7023 SVL Box, Victorville, CA 92395
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